For years I have been struggling with a disease know as Poly Cystic Ovary Syndrome (PCOS). Finally I feel like it is time to open up and share with people my struggle. This condition affects five to ten percent of all women and sadly only one in ten of those women even know they have it. Hopefully I can help spread the message and more of these women can get help before it's too late. For more information on PCOS please feel free to ask me or visit pcosfoundation.org or soulcysters.com. And please if you know someone who may have it or if you think you may have it do not hesitate to ask your doctor. Getting treatment started early can save your life.
My story: I was diagnosed with PCOS when was 19 (I am currently 23, turning 24 in April). My husband and I had been trying. unsuccessfully, to conceive for a year and finally decided to seek medical help. After talking to my doctor she did a few tests and eventually an ultrasound to confirm. I found out I am basically the "text book case". If I would have had a doctor who thought to test earlier I could have saved myself years of problems and most likely prevented a few of my health issues. Currently my symptoms are; irregular periods, obesity (mainly holding the weight in my stomach), excessive body hair growth, high androgen levels (male hormone), male-pattern hair loss, insulin resistance, high cholesterol, infertility and of course the cysts. I have been trying to manage them as best I can but it's hard. Metformin has become my best friend. I swore it was trying to kill me when I first started it but now I know I can't live without it. Thanks to it and perseverance I lost over 70lbs. I still have a ways to go but losing that much has changed my life so much.
I think for a while I was letting PCOS control me when I should have been the one in control. When I was first diagnosed I felt like it was a death sentence and I pretty much gave up hope. Then I did the worst thing I could and tried to ignore it. Once I finally came around, in large part thanks to my fellow cysters, I realized I could beat this. I am not a quitter, I don't back down, I never have. So why was I letting something push me around and take over my life. With the support of my husband I got on meds and started taking my life back. During the weight loss I started trying conceive again. First we went to an acupuncturist (which I would recommend to anyone, even if its just for pure relaxation). She was an amazing woman who did everything she could to help me but unfortunately my insurance wouldn't cover it and at $100 a visit it became too expensive. After I finished losing the weight we went back to the Dr where I was put on clomid . Ordinarily you are only supposed to take it for no more than six cycles but unfortunately I had a very uncaring doctor who kept me on it for a whole year. I did conceive once but that little one went on to be our guardian angel at 11 weeks. After a year of clomid and the loss of our angel we took another break. Finally after about six months we went to a new doctor. She was an endocrinologist and happened to specialize in PCOS and infertility. Her first suggestion was another round of tests which gave me hope. The results showed that thankfully(?) the only reason we weren't conceiving was the PCOS. I am lucky enough to to be one of the cysters with endometriosis or other female conditions. After that was established I began a regiment of femara (Clomids twin sister). We also had our first IUI. The procedure was very expensive and at that time we had just lost our insurance, which forced us to only do one attempt. It turned out to be successful but this too ended in a loss.
I began to feel defeated again. It seemed no matter how hard I tried I just kept getting knocked down. All I wanted was to curl up in a ball and cry. Which I did more than once. I knew that my husband was being as supportive as he could but in a way the more supportive he was the worse I felt. I felt like I was letting him down. I know how badly he wants children and it feels like I will never be able to give him that. I felt like he could do better. I even told him he was allowed to leave and go have children with someone else. I wouldn't have held it against him if he would have left. He deserves so much more in life than what I can give him but for some crazy reason he's stayed and he's fought along with me.
Recently I was able to start menstruating on my own which was incredibly exciting for me. After a couple of months of doing it on my own I was able to conceive yet again. Unfortunately on November 15 2011 we lost this one too. Not even two weeks later I again conceived but after 9 short weeks this one was lost. I am so ready to give up yet at the same time I'm not. I know what I want in life and I will not stop trying to get it. We have considered adoption but for now that is something that is just a dream. Due to monetary issues and our ages we are having a hard time finding adoption help. We are diligently saving in hopes of one day being able to save and unwanted child and shower them with love but we know that is still a while off.
In the mean time we have decided we are still going to try. We can't give up. So on 02/13/2012 I will be going back to the doctor to see what the next step is. We are hoping that this year is our year and we will finally have our little miracle. So everyone please send baby dust our way as we embark on the next leg of our journey.